Slow and steady wins the race

I had an x-ray yesterday and there didn’t appear to be any shrinkage but it hadn’t grown either which is a constant fear of mine! I have only been on the pills for a little over 4 weeks so it wouldn’t be common to see much change at this time but the fact that it hasn’t grown shows that it is blocking it at least! Obviously you hope to go in and hear that “the pill is working miracles and it’s shrunk by half” but must remember that slow and steady wins the race!

sswtr2

I am now scheduled for a CT on August 31st to get a clear picture of what is happening. Since x-rays are not as clear as a three-dimensional image, we will be able to get actual measurements down to the millimetre from the CT. After this CT, if there is marked improvement (pretty unlikely at this point but possible!) then we will continue on with the pills to try and get more shrinkage but if there is only marginal improvement, we will go back to Plan A which consists of chemo and radiation. I knew that an interruption in therapy to get combination treatment was the plan all along but it was just a matter of determining when to interrupt the Xalkori to go in and fry it!

Essentially, if it is only shrinking at very small rate, then my doctor does not want to miss the window of opportunity to treat me with a full dose of radiation as this was something that we didn’t even feel was an option only a couple of months ago. We’ve seen how fast it can grow in a matter of 3 weeks and don’t want to risk that happening again. As of right now, it looks like I will be receiving 6 weeks of chemo/radiation every day starting at the beginning of September. It’s a pretty intense treatment and very aggressive but I am so fortunate to have this opportunity. Statistically (remember that statistics don’t always apply to me) this type of treatment has between a 20-25% curative success rate. The fact that I was previously told by doctors in Edmonton to “get my affairs in order and that I would have less than a year”, these numbers are really encouraging to me! I couldn’t be more grateful to have the BEST team of oncologists working with me in Ottawa. I am very confident that they are going to save my life and still can’t believe just how lucky I am to have found such amazing doctors such as Dr. Scott Laurie at the Ottawa Cancer Centre.

There is still a possibility that the chemo/radiation may be postponed to later but am preparing for September. If we get news on the 31st that it has shrunk even more, I will be ecstatic but just knowing that I have Xalkori as preventative maintenance afterwards is more reassurance that I can beat this thing.

Two more weeks of the waiting game, which doesn’t seem to get any easier, and then we will get a definitive answer as to what our next plan of attack is! I also have my younger brother’s wedding to look forward to which is on September 5th! He is marrying an amazing girl who I can’t wait to call my sister-in-law.

matt

(Aren’t they adorable?!)

My next post will be after September 2nd when I get a CT and a game plan! Thanks again to everyone for your continual support and prayers throughout this battle! I can’t begin to thank you all enough!

#LIVINGwithlungcancer

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12 thoughts on “Slow and steady wins the race

  1. Hi Elizabeth,
    You do not know me however I know some of your family members from school many years ago. I have been following your situation since I heard about it. My heart is sad for you, however I know you are a fighter and that you are so loved. I pray for you and your family every day! Be kind and gentle to yourself, in your quiet moments, snuggle up with a soft blanket, it will comfort your heart and your mind. Thank you for sharing your journey, I’m sure it helps you and please know it helps others like me as well. Take care! Bernice MacMillan (nee Lefebvre)

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  2. Elizabeth – I am sending you prayers and positive thoughts! Your baby is beautiful. Nice to hear your brother’s good news. Your grandmother and Sharon always knew the right words. I am not so gifted but I am sending their love. Marg

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  3. Keeping you, Dax and Jack in my prayers. Thank you for the updates and that treatment is moving in as positive direction. God bless and take care.

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  4. we do not know each other but i want you to know about a young friend of mine Amy Kerr – she is like a daughter to me diagnosed at 24 with malignant melanoma . has made it through major surgery , radiation , chemo . she is now pregnant with a bouncing baby boy ( due in 7 weeks ) they thought she would never get pregnant . she is 27 and doing great ! engaged and a step mom to 11.5 year old Logan a great boy – Melvin and I will be grandparents soon as she has adopted us and we her a great young lady and 90 % of her game is attitude ! stay positive she has and look at the spoils of war 🙂 we sll are and it is working :)))) teresa

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  5. You have strength and courage, Elizabeth! You are on a challenging road and are doing a fabulous job! We are so thankful for your wonderful medical team, as well. Thank YOU for keeping us informed.

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  6. Hi Elizabeth – really appreciate the updates, as I think of you and your family everyday since hearing about your current battle. Sending you positive vibes….big hugs too. Stay strong my girl….

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    • HI Elizabeth, you don’t know me but my husband and I are very good long time friends of Ian and Wendy MacInnis.
      We have been following your battle since we first heard from Wendy. We are sending positive thoughts every day along with prayers for you and your wonderful family. Your baby is beautiful!! We admire your strength, determination and positive will. You are a great inspiration.
      Slow and Steady! Keep your eyes on the prize. Xo.💕

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    • HI Elizabeth, you don’t know me but my husband and I are good friends of Ian and Wendy MacInnis.
      We have been following your battle fromantic the beginning. We are sending positive thoughts every day along with prayers for you and your family. Your baby is beautiful!! We admire your strength, determination and positive will. You are a great inspiration.
      Slow and Steady! Keep your eyes on the prize. Xo.💕

      Like

    • HI Elizabeth, you don’t know us but we are good friends of Ian and Wendy MacInnis.
      We have been following your battle from the beginning. We are sending positive thoughts every day along with prayers for you and your family. We admire your strength, determination and positive will. You are a great inspiration.
      Slow and Steady! Keep your eyes on the prize. Xo.💕

      Like

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