I had an x-ray yesterday and there didn’t appear to be any shrinkage but it hadn’t grown either which is a constant fear of mine! I have only been on the pills for a little over 4 weeks so it wouldn’t be common to see much change at this time but the fact that it hasn’t grown shows that it is blocking it at least! Obviously you hope to go in and hear that “the pill is working miracles and it’s shrunk by half” but must remember that slow and steady wins the race!
I had an xray after a 12 day trial on Xalkori on Monday and the scans showed that the tumours looked marginally smaller! This is great news because one of my fears was that the cancer wouldn’t react to the … Continue reading →
As I explained in my previous post, I tested positive for the ROS-1 genetic mutation! Essentially what this means is that they’ve been able to identify my cancer cell’s exact mutation. These mutations have been studied and they’ve actually created targeted therapies (oral medications) that have shown amazing results to reduce and control the cancer. Some people have been on this medication for over 3 years and are still seeing results! I was beyond thrilled to receive this news from Foundation Medicine and was so thankful that I sent my tissue away to the US for further testing since they don’t test for these markers in Canada. Currently in Canada, they test for only 2 genetic markers (ALK & EFGF) related to lung cancer. In the US, for a fee of $6000, they tested the tissue that I got from my biopsy for 315 markers. Had I not been aware or able to send this tissue out I would never have learned about my marker! Continue reading →
We have had an amazing couple of weeks! Lots of updates!!
Firstly, we welcomed our son Jack Louis Dessureault into the world on June 30th weighing 5.1lbs. He was born at 32 1/2 weeks and is doing very well! He should be able to come home in a week or two. The staff at the NICU has been so fantastic and is taking great care of him while he gets stronger. We are completely in love and so thankful that he was born early without any complications!
As many of you already know, I was recently diagnosed with late stage non-small cell lung cancer. Since the diagnosis, I now refer to this stage of my life as “life interrupted”. On April 21st, 2015 I was told that … Continue reading →