If you or someone you know has ROS1+ cancer, please contribute to research by completing the following surveys. If we want to find a CURE we need to know how many patients would be willing to participate in research for cancer driven by ROS1!
PLEASE COMPLETE THIS BRIEF 10-QUESTION POLL AS SOON AS POSSIBLE. Just click on the link below to get started! It only takes about 5 minutes. Results of the poll will be posted on the ROS1cancer website, and the Bonnie J. Addario Lung Cancer Foundation (ALCF) ROS1 website.
In addition, please complete the ROS1 patient survey on the ALCF ROS1 website. We need more responses (and you must complete all questions to have statistically valid data). It’s a long survey, it took me about 45 minutes – 1 hour however the questions are thorough and imperative to helping us find a CURE. The preliminary results of the survey will be presented at the IASLC World Conference on Lung Cancer in Vienna in December 2016.
LASTLY, If you live in Canada, and tested negative for both ALK & EGFR, you should consider sending your tissue to Foundation Medicine in the US to have comprehensive genomic testing done! Had I not done this, I never would have found out that I was ROS1+!
** Please note, this does come at an out of pocket cost of several thousand dollars
Don’t Guess – TEST!